Now that his adult sons are managing their own hemophilia care, columnist Joe MacDonald is able to consider moving for a job.
Observing her husband, columnist Alliah Czarielle sees that getting older is a great equalizer, as more in their community have health woes.
Two hemophilia patients in the U.S. who struggled for years with bleeds have been given Hemgenix, the first gene therapy ...
Columnist Jennifer Lynne reflects on her most-read columns from last year and why those stories resonated with the hemophilia community.
Two new patients in the U.S. have received Hemgenix (etranacogene dezaparvovec), the first gene therapy to be approved for hemophilia B, per new reports. The therapy was first administered last year ...
On Monday, my youngest son, Caeleb, will begin his second semester as a freshman at the University of New Mexico. Last night he asked me if I had a few minutes to talk. I might not be the sharpest ...