Cystic Fibrosis Foundation2d
Facing Mortality: My Journey Through CF, Addiction, and Recovery
Growing up with CF, I always felt like my life was a ticking time bomb. Growing up, I didn’t really think about my own mortality and my life span; that all changed when I turned 18. I vividly remember ...
Cystic Fibrosis Foundation7d
How I Fought for Answers About My Health
I was diagnosed with cystic fibrosis as a baby, only to be told later that I didn't have it. As an adult, I began to face persistent health challenges and had to become my own advocate, pushing for ...
Cystic Fibrosis Foundation18d
Give Monthly
Help make CF stand for Cure Found. Give Once Give to a Walker Other Ways to Give ...
Cystic Fibrosis Foundation26d
FDA Approves New, Once-a-Day CFTR Modulator for People With CF
A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...
Cystic Fibrosis Foundation26d
FDA Approves Trikafta for 94 Additional Rare CFTR Mutations
The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and ...
Cystic Fibrosis Foundation27d
Finding Strength in the CF Community
When my daughter, Elara, was diagnosed with cystic fibrosis at just 1 month old, my world shifted in an instant. As a mother to a 5-year-old, I was no stranger to the ups and downs of parenting, but ...
Cystic Fibrosis Foundation28d
The Unexpected Aftermath of CF-Related Liver Disease
I was diagnosed with cystic fibrosis-related liver cirrhosis in 2004 at the age of 9. Growing up, my disease wasn’t something to be pitied or seen as a weakness. It was a strength. I had the mentality ...
Cystic Fibrosis Foundation1mon
Why Taking Care of Myself Is the Best Thing I Can Do for My Daughter
Caring for a child with CF is challenging in more than one way. My daughter’s struggles often bring up my own mental health obstacles, making it difficult to be fully present for her when she needs me ...
Cystic Fibrosis Foundation5mon
Delaware Valley Chapter - Philadelphia Office
The Delaware Valley Chapter - Philadelphia Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many ...
Cystic Fibrosis Foundation8mon
Nutritional Considerations for a New Era: A CF Foundation Position Paper
The introduction of highly effective CFTR modulator therapy (HEMT) has led to improved nutrition among people with CF and has been associated with increasing rates of overweight and obesity. As a ...
Cystic Fibrosis Foundation8mon
Finding Strength in Running With CF
Growing up with CF, running was never an easy thing for me. Despite that, I dedicated myself to my school’s cross-country team for years and earned a spot on the varsity team. When the chance to ...