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World Rare Disease Day: Edmonton area Guillain-Barré syndrome survivor shares her story
Holly Helm’s life changed forever. “It was like life changed within a blink of an eye,” she explained. “I was completely ...
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Union Co. group raises awareness for rare diseases
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...
Clinical trial provides hope for Mass. child with rare genetic disorder
On the very day Noa was diagnosed, an experimental gene therapy and clinical trial were posted to treat Canavan disease. Noa was only the third patient in the world to be dosed with the gene therapy, ...
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Vermont organization spotlights Rare Disease Day
Friday is Rare Disease Day, which raises awareness for rare diseases and aims to improve access to treatment and medical representation for individuals with rare diseases and their families.
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New York's governor orders college to remove Palestinian studies job listing
New York’s governor ordered a state school to remove a job posting for a Palestinian studies teaching position this week, ...
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Health minister pledges rare disease strategy
An estimated 60,000 people in Cyprus suffer from rare diseases, Health Minister Michael Damianos said on Friday. He pledged that the ministry would move methodically to establish a comprehensive ...
Family finds rare disease diagnosis after 14-year search
MADISON, Wis. (WIFR) - For 14 years, Treyson Wallace’s family searched for answers. Born in 2009, Treyson failed a newborn ...
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Rare Disease Day highlights awareness, research efforts happening in Roanoke and New River Valley
Rare Disease Day, observed on Feb. 28, brings attention to uncommon diseases affecting populations of 200,000 or fewer. In ...
Victoria News4h
Victoria's A Million Acts of Love help youth to honour Rare Disease Day
A Million Acts of Love (AMAOL) has found their first grantee in Ella Gauthier, a student in Kamloops honouring her brother ...
Couple raises awareness about son's rare muscle disorder
Feb. 28 is Rare Disease Day. A County mom and dad are sharing their story in hopes of raising awareness of the uncommon ...
After A Five-Tool Career, Bernie Williams Steps To The Plate To Take On Rare Disease Day
Williams, who has performed the National Anthem at baseball stadiums as part of Boehringer Ingelheim’s Breathless campaign, ...
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Lancaster County couple raises awareness about son's rare genetic disorder
A Lancaster County mother and father are sharing their story in hopes of raising awareness of the uncommon genetic disorder their child is facing. There's no treatment and no cure, but the family is ...