This Epilepsy Syndrome is Straight From Hell #seizure Dravet syndrome, a rare and severe form of epilepsy, typically begins in infancy. It is often characterized by frequent and prolonged seizures, developmental delays, and cognitive impairment. The condition is primarily caused by a genetic mutation affecting the SCN1A gene. While treatment focuses on seizure management, individuals with Dravet syndrome may face challenges in daily life. A multidisciplinary approach, including antiepileptic med
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This Epilepsy Syndrome is Straight From Hell #seizure Dravet syndrome, a rare and severe form of epilepsy, typically begins in infancy. It is often characterized by frequent and prolonged seizures, developmental delays, and cognitive impairment. The condition is primarily caused by a genetic mutation affecting the SCN1A gene. While treatment focuses on seizure management, individuals with Dravet syndrome may face challenges in daily life. A multidisciplinary approach, including antiepileptic med
2.7M viewsNov 18, 2023
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Cooper’s 13 and tonight this is the beginning of the most intense seizures we’ve experienced in a while. This is DRAVET syndrome and our families journey through this rare form of epilepsy. We share the spread awareness of what life is like, battling a rare syndrome Without a cure surgery or medication to stop them.##cooperstrong💜🙏##fyp##specialneeds##life##awareness
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2 of 10 one of our toughest days lately fighting Dravet Syndrome and rare seizure disorder.
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TikTokdaddypapaandcooperboy
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¿Quién dice que esto solo afecta al niño? 👀 Una mamá Dravet lo explica en 1 minuto. No es “su” enfermedad: es la de toda la familia. ¿Qué le dirías tú a quien mira hacia otro lado? #sindromededravet #enfermedadesraras #fyp
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Will this day ever end this outbreak of seizures is our life. The past few videos was our night and morning. Welcome to Dravet Syndrome this is our life our journey and we share to spread awareness. Living life with epilepsy!! #cooperstrong💜🙏 #fyp #specialneeds #life #GodisGood
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TikTokdaddypapaandcooperboy
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#onthisday Seizure content awareness . Dravet syndrome awareness. This video went viral & is used as false content. Dravet syndrome is a severe seizure disorder and is horrific for children to have to endure. #curedravet #fyp #seizure
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TikTokalina_dravetwarrior
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This disease is a monster. Children with dravet syndrome need a cure. #warning #seizure #dravetsyndrome #monster #elilepsy #awareness #fyp #foryou #foryourpage #💔 #dravetsyndromeneversleeps
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TikTokalina_dravetwarrior
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This is epilepsy!! Cooper battles daily seizures caused by Dravet Syndrome a rare and incurable form of epilepsy. We share these tough videos to spread awareness. Now if you see someone seizing it won’t be your first and hopefully you can learn a few ways to help keep them safe!! God Bless #cooperstrong💜🙏 #specialneeds #parenting #love #fyp
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TikTokdaddypapaandcooperboy
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