In this BBC Points West report, Darren and Matt share their powerful stories of living with Friedreich’s Ataxia — a rare, progressive condition affecting balance, coordination, and movement. Dr Paola Giunti from the UCL Ataxia Centre explains how early access to emerging treatments can make a real difference. 🎗️ Ataxia UK funds vital research, supports families, and raises awareness across the UK. 💬 Watch their stories, share widely, and help more people understand Friedreich’s Ataxia. Find ou
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In this BBC Points West report, Darren and Matt share their powerful stories of living with Friedreich’s Ataxia — a rare, progressive condition affecting balance, coordination, and
Ataxia UK. . In this BBC Points West report, Darren and Matt share their powerful stories of living with Friedreich’s Ataxia — a rare, progressive condition affecting balance, coordination, and movement. Dr Paola Giunti from the UCL Ataxia Centre explains how early access to emerging treatments can make a real difference. 🎗️ Ataxia UK ...
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As we reach the final day of the Big Give Christmas Challenge, Ben’s words show exactly why your support matters so much. “I live with ataxia, so I know what it means when treatments are there but stuck in a system that moves too slow. Every day, many people like me are trying our best to live our lives to the fullest while waiting for support to exist somewhere, but not here, not yet.” This year, it’s also about Harry and James, twins living with episodic ataxia. Their parents are caught “betwe
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In case you missed it today, Labour MP for Hartlepool, Jonathan Brash raised the urgent need for access to Omaveloxolone (OMAV) for people living with Friedreich’s Ataxia, calling on the government to meet with Ataxia UK. We’re encouraged by the Deputy Prime Minister’s commitment to arrange this meeting — a meaningful step forward for our community. This moment highlights the courage of our community and the power of advocacy to push for fair access to life-changing treatments. 🩵 #AtaxiaUK #Fri
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